National Research Center for Parents with Disabilities

Parent-Centered Planning for Parents with Intellectual and Developmental Disabilities: Resources

To address the common failure to acknowledge the parental and caregiving roles of increasing numbers of adults with intellectual and developmental disabilities, NRCPD researchers have developed a model to help formal services systems that work with these parents.

Read a summary of the model.

For a detailed description of the model, see:

  • Lightfoot, E., & DeZelar, S. (2020).  Parent-Centered Planning: A new model for working with parents with intellectual and developmental disabilities. Children and Youth Services Review, 114, 1–5.
  • Lightfoot, E., & DeZelar, S. (2020). Parent-Centered Planning for Parents with Disabilities. No. 36. Center for the Advanced Study of Child Welfare, School of Social Work, University of Minnesota. https://cascw.umn.edu/portfolio-items/parent-centered-planning-for-parents-with-disabilities-pn36/

In addition, the researchers have prepared a Facilitator's Manual:

Lightfoot, E., DeZelar, S. & Suleiman, J. (2021). Parent-Centered Planning: Facilitator’s Manual. St. Paul, MN: School of Social Work, University of Minnesota. https://osf.io/preprints/socarxiv/tx72c/

A video series is also available for social work CEUs from the University of Minnesota:

Lightfoot, E. (2022). Parent Centered Planning for Parents with Disabilities: 3-Part Training Module. Center for the Advanced Study of Child Welfare, School of Social Work, University of Minnesota. https://cascw.umn.edu/portfolio-items/parent-centered-planning-for-parents-with-disabilities-1-0-hrs/