Health Data Sources for Parents with Disabilities in the United States (Plain-language summary)

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Knowing about the health of parents with disabilities is important. Researchers can find out what kind of health care they need. But there is not much information that focuses on their health. Some research sources include parents with disabilities. But they do not talk about their specific needs.

Researchers need more information about parents with disabilities. It is much harder for researchers to get the facts they need. It is hard for doctors and people in government, too. It is also difficult to find out about the health of people with disabilities, and what needs they still have. Finding out more information about parents with disabilities is important for researchers.

We have written a list of sources that have information about the health of parents with disabilities. Our list will help researchers. This list includes overall health, money, work, self-care, drug use, other disabilities, and more. These data sets come from different sources. They were made for different reasons. All of them have information that researchers and other people can use to make the lives of parents with disabilities better.  We call this list the Compendium of Health Data Sources for Parents with Disabilities in the United States 2017. It can be found on our website, centerforparentswithdisabilities.org.

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Adapted from Li, Parish, Mitra, & Nicholson (2016). Health of US parents with and without disabilities, Disability and Health Journal, http://dx.doi.org/10.1016/j.dhjo.2016.12.007