Publications

Researchers at the Lurie Institute have published numerous articles on the needs, outcomes, and experiences of people with disabilities, their families, and professionals who work with them. These papers, which cover topics as varied as hospitalization outcomes among people with intellectual and developmental disabilities to material hardships affecting people with disabilities, draw from multiple disciplines and are rooted in an ethos that places the well-being and integration of people with disabilities in the wider community at the forefront. 

2019

  • Akobirshoev, I., Mitra, M., Dembo, R., & Lauer, E. (2019). In-hospital mortality among adults with autism spectrum disorder in the United States: A retrospective analysis of US hospital discharge data. Autism. doi: 10.1177/1362361319855795
  • Akobirshoev, I., Mitra, M., Parish, S.L., Valentine, A., Moore Simas, T. (in press). Racial and ethnic disparities in birth outcomes and labor and delivery charges among Massachusetts mothers with intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities.
  • Dembo, R. S., Mitra, M., Akobirshoev, I., & Manning, S. E. (2019). Symptom sequelae following violence against youth with disabilities. Journal of Interpersonal Violence. doi: 10.1177/0886260519889928
  • Mitra, M., Akobirshoev, I., Parish, S.L., Valentine, A., Clements, K., & Moore Simas, T. (2019). Postpartum emergency department use among women with intellectual and developmental disabilities: A retrospective cohort study. Journal of Epidemiology and Community Health, 73(6), 557-563. doi: 10.1136/jech-2018-211589
  • Moring, N. S., Parish, S. L., Mitra, M., & Alterio, N. (2019). After disclosure: A research protocol to respond to sexual assault and abuse disclosures in research with adults with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities. doi: 10.1111/jppi.12292
  • Namkung, E.H., Mitra, M., & Nicholson, J. (2019). Do disability, parenthood, and gender matter for health disparities?: A U.S. population-based study. Disability and Health Journal.
  • Nicholson, J., & Valentine, A. (2019). Key informants specify core elements of peer supports for parents with serious mental illness. Frontiers in Psychiatry, 10. doi: 10.3389/fpsyt.2019.00106
  • Powell, R.M. (2019). Family law, parents with disabilities, and the Americans with Disabilities Act. Family Court Review, 57(1), 37-53. doi:10.1111/fcre.12396.
  • Powell, R.M. & Nicholson, J. (2019). Disparities in child protective services: Commentary on Kaplan et al. (2019). Psychiatric Services, 70(3), 209-210. doi: 10.1176/appi.ps.201900027.
  • Shields, M.C., Akobirshoev, I., Mitra, M., Dembo, R. (2019). Self-injurious behavior among adults with ASD: Hospitalizations, length of stay, and costs of resources to deliver care. Psychiatric Services. doi: 10.1176/appi.ps.201800318
  • Sonik, R.A., Parish, S. L. & Mitra, M. (2019) Association of health status with receipt of supplemental security income among individuals with severe disabilities and very low income and assets. JAMA Internal Medicine. doi: 10.1001/jamainternmed.2018.8609
  • Sonik, R.A., Parish, S. L. & Mitra, M. (2019) Food insecurity patterns before and after initial receipt of Supplemental Security Income. Public Health Nutrition, 22(10), 1909-1913. doi: 10.1017/S1368980019000570
  • Valentine, A., Akobirshoev, I., & Mitra, M. (2019). Intimate partner violence among women with disabilities in Uganda. International Journal of Environmental Research and Public Health, 16(6). doi: 10.3390/ijerph16060947

2018

  • Akobirshoev, I., Mitra, M., Parish, S., Moore Simas, T.A., Dembo, R., & Ncube, C. N. (2018). Racial and ethnic disparities in birth outcomes and labour- and delivery-related charges among women with intellectual and developmental disabilities. Journal of Intellectual Disability Research, 63(4), 313-326. doi: 10.1111/jir.12577
  • Clements, K.C., Mitra, M., Zhang, J., & Iezzoni, L.I. (2018). Antenatal hospital utilization among women at risk for disability. Journal of Women's Health, 27(8),1026-1034. doi: 10.1089/jwh.2017.6543
  • Crossman, M.K., Parish, S., Hauser-Cram, P., & Warfield, M.E. (2018). The influence of early intervention, informal support and the family environment on trajectories of competence for fathers raising children with developmental disabilities. Research in Developmental Disabilities, 81,122-133. doi: 10.1016/j.ridd.2018.04.025
  • Crossman, M.K., Warfield, M.E., Kotelchuck, M., Hauser-Cram, P., & Parish, S. (2018). Associations between early intervention home visits, family relationships and competence for mothers of children with developmental disabilities. Maternal and Child Health Journal, 22(4), 599-607. doi: 10.1007/s10995-018-2429-x
  • Dembo, R. S., Mitra, M., & McKee, M. (2018). The psychological consequences of violence against people with disabilities. Disability and Health Journal, 11(3), 390-397. doi: 10.1016/j.dhjo.2018.01.006
  • Eagan, T.J., Teshale, S., Herrera-Venson, A.P., Ordway, A., & Caldwell, J. (2018). Participation in two evidence-based falls prevention programs by adults aging with a long-term disability: Case-control study of reach and effectiveness. Journal of Aging and Health. doi: 10.1177/0898264318808918
  • Floyd, F.J., Mailick, M.R., Greenberg, J.S., Namkung, E.H., & Song, J. (2018). Families at midlife. APA Handbook of Contemporary Family Psychology, 1, 611-629. Retrieved from: https://psycnet.apa.org/buy/2018-59956-034
  • Li, H., Mitra, M., Wu, J. P., Parish, S.L., Valentine, A., & Dembo, R.S. (2018). Female sterilization and cognitive disability in the United States, 2011–2015. Obstetrics & Gynecology, 132(3), 559-564. doi: 10.1097/AOG.0000000000002778
  • Mitra, M., Akobirshoev, I., Clements, K., Parish, S. L., & Zhang, J. (2018). Antenatal hospitalization among U.S. women with intellectual and developmental disabilities: A retrospective cohort study. American Journal on Intellectual and Developmental Disabilities Research, 123(5), 399-411. doi: 10.1352/1944-7558-123.5.399
  • Mitra, M., Akobirshoev, I., Rosenthal, E. & Moore-Simas, T.A. (2018). Postpartum hospital utilization among Massachusetts women with intellectual and developmental disabilities: A retrospective cohort study. Maternal and Child Health, 22, 1492. doi: 10.1007/s10995-018-2546-6
  • Mitra, M., Long-Bellil, L., & Powell, R. M. (2018). Public health ethics relating to persons with disability. In J. Kahn, N. Kass & A. Mastroianni (Eds.). Oxford Handbook of Public Health Ethics. doi: 10.1093/oxfordhb/9780190245191.013.20
  • Mitra, M., Parish, S. L., Akobirshoev, I., Rosenthal, E. & Moore Simas, T. A. (2018). Postpartum Hospital Utilization among Massachusetts Women with Intellectual and Developmental Disabilities: A Retrospective Cohort Study. Maternal and Child Health, 22(10), 1492-1501. doi: 10.1007/s10995-018-2546-6
  • Namkung, E.H., Greenberg, J.S., Mailick M.R., & Floyd , F.J. (2018). Lifelong parenting of adults with developmental disabilities: Growth trends over 20 years in midlife and later life. American Journal on Intellectual and Developmental Disabilities, 123(3), 228-240. doi: 10.1352/1944-7558-123.3.228
  • Nicholson, J., & Valentine, A. (2018). Defining "Peerness": Developing peer supports for parents with mental illnesses. Psychiatric Rehabilitation Journal, 41(2), 157-159. doi: 10.1037/prj0000301
  • Parish, S.L., Son, E., Powell, R.M., & Igdalsky, L. (2018). Reproductive cancer treatment hospitalizations of U.S. women with intellectual and developmental disabilities. Intellectual & Developmental Disabilities, 56(1), 1-12. doi: 10.1352/1934-9556-56.1.1
  • Powell, R.M., Mitra, M., Smeltzer, S.C., Long-Bellil, L.M., Smith L.D., Rosenthal, E., & Iezzoni, L. (2018). Adaptive parenting strategies used by mothers with physical disabilities caring for infants and toddlers. Health and Social Care in the Community. doi: 10.1111/hsc.12706
  • Powell, R.M., Mitra, M., Smeltzer, S.C., Long-Bellil, L. M., Smith, L. D., & Rosenthal, E. S. (2018). Breastfeeding among women with physical disabilities in the United States. Journal of Human Lactation, 34(2), 253-261. doi: 10.1177/0890334417739836
  • Sannicandro, T., Parish, S.L., Fournier, S., Mitra, M., & Paiewonsky, M. (2018). Employment, income, and SSI effects of postsecondary education for people with intellectual disability. American Journal on Intellectual and Developmental Disabilities, 123(5), 412-425. doi: 10.1352/1944-7558-123.5.412
  • Shields, M. C., Reneau, H., Albert, S., Siegel, L., & Trinh, N. (2018). Harms within inpatient psychiatric facilities in the United States: An analysis of news articles. Issues in Mental Health Nursing, 39(9), 757-763. doi: 10.1080/01612840.2018.1451579
  • Smeltzer, S.C., Mitra, M., Long-Bellil, L. M., Iezzoni L.I., & Smith, L.D. (2018). Obstetric clinicians' experiences and educational preparation for caring for pregnant women with physical disabilities: A qualitative study. Disability and Health Journal, 11(1), 8-13. doi: 10.1016/j.dhjo.2017.07.004
  • Sonik, R.A., Parish, S.L., Mitra, M., & Nicholson, J. (2018). Parents with and without disabilities: Demographics, material hardship, and program participation. Review of Disability Studies, 14(4). Retrieved from: https://rdsjournal.org/index.php/journal/article/view/822
  • Sonik, R.A, Parish, S. L., Mitra, M. (2018). Inpatient Medicaid utilization and expenditure patterns after changes in Supplemental Nutrition Assistance Program benefit levels. Preventing Chronic Disease, 15. Retrieved from: https://www.cdc.gov/pcd/issues/2018/18_0185.htm
  • Warfield, M.E., Adams, R.S., Ritter, G., Valentine, A., Williams, T.V., & Larson, M.J. (2018). Health care utilization among children with special health care needs in military families. Disability and Health Journal, 11(4), 624-63. doi: 10.1016/j.dhjo.2018.06.002
  • Woodman, A.C., Demers, L.B., Crossman, M.K., Warfield, M.E., & Hauser-Cram, P. (2018). The influence of Part C early intervention dosage levels on growth in adaptive skills through adolescence. Early Childhood Research Quarterly, 43(2), 73-82. doi: 10.1016/j.ecresq.2018.01.007
  • Wu, J.P., Zhang, J., Mitra, M., Parish, S.L., & Reddy, G.K. (2018). Provision of moderately and highly effective reversible contraception to women with intellectual and developmental disabilities: Evidence from the Massachusetts All-Payer Claims Database. Obstetrics & Gynecology, 132(3), 565-574. doi: 10.1097/AOG.0000000000002777

2017 and Prior Years

  • Mitra, M., Parish, S. L., Akobirshoev, I., & Moore-Simas, T. A. (2017). Postnatal hospital utilization among U.S. women with intellectual and developmental disabilities [10N]. Obstetrics & Gynecology, 129(5). doi: 10.1097/01.AOG.0000514720.96759.d1
  • Mitra, M., Smith, L. D., Smeltzer, S. C., Long-Bellil, L. M., Moring, N. S., & Iezzoni, L. I. (2017). Barriers to providing maternity care to women with physical disabilities: Perspectives from health care practitioners. Disability and Health Journal, 10(3), 445-450. doi: 10.1016/j.dhjo.2016.12.021
  • Powell, R. M. (2017). Safeguarding the rights of parents with intellectual disabilities in child welfare cases: The convergence of social science and law. CUNY Law Review, 20(1), 127-149. Retrieved from: https://academicworks.cuny.edu/cgi/viewcontent.cgi?article=1415&context=clr 
  • Powell, R. M., Mitra, M., Long-Bellil, L. M., Smeltzer, S. C., Smith, L. D., & Iezzoni, L. I. (2017). Family attitudes and reactions towards pregnancy among women with physical disabilities. Women's Health Issues, 27(3), 345-350. doi: 10.1016/j.whi.2017.01.003 
  • Powell, R. M., Mitra, M., Smeltzer, S. C., Long-Bellil, L. M., Smith, L. D., & Rosenthal, E. S. (2017). Breastfeeding among women with physical disabilities in the United States. Journal of Human Lactation, 34(2), 253-261. doi: 10.1177/0890334417739836
  • Powell, R. M. & Parish, S. L. (2017). Behavioral and cognitive outcomes in young children of mothers with intellectual impairments. Journal of Intellectual Disability Research, 61(1), 50-61. doi: 10.1111/jir.12308
  • Powell, R. M., Parish, S. L., & Akobirshoev, I. (2017). The health and economic wellbeing of U.S. mothers with intellectual impairments. Journal of Applied Research in Intellectual Disabilities, 30(3), 456-468. doi: 10.1111/jar.12308
  • Sannicandro, T., Parish, S. L., Son, E., & Powell, R. M. (2017). Health care changes for children with special health care needs, 2005-2011. Maternal and Child Health Journal, 21(3), 524-530. doi: 10.1007/s10995-016-2136-4
  • Smeltzer, S. C., Mitra, M., Long-Bellil, L. M., Iezzoni, L. I., & Smith, L. D. (2017). Obstetric clinicians' experiences and educational preparation for caring for pregnant women with physical disabilities: A qualitative study. Disability and Health Journal, 11(1), 8-13. doi: 10.1016/j.dhjo.2017.07.004
  • Sonik, R. A., Parish, S. L., Akobirshoev, I., Son, E., & Rosenthal, E. S. (2017). Population estimates, health care characteristics, and material hardship experiences of U.S. children with parent-reported speech-language difficulties: Evidence from three nationally representative surveys. Language Speech and Hearing Services in Schools, 48(4), 286-293. doi: 10.1044/2017_LSHSS-16-0072