Improving disabled people’s pregnancy experiences and outcomes through research, training, and education

Happening Now at NCDPR

Inclusion of Black and Latina Parents with Physical Disabilities in a Qualitative Research StudyInclusion of Black and Latina Parents With Physical Disabilities in a Qualitative Research Study: A Peer Researcher Training Model

Compared to a small but growing community of Black and Latinx academic researchers with disabilities, there is little inclusion in the research process of non-academic community members with similar intersectional identities. Lurie Institute researchers conducted a qualitative study examining the pregnancy experiences of people from Black/Latinx communities who have physical disabilities that involved training four peer researchers to conduct interviews and analyze the data. This article describes the researchers' approach and suggests how it might offer a model for training peer researchers in qualitative research methodology.

Access the research article

Plain-language summary to come soon!

Two-Part Series on Deaf and Hard-of-Hearing MothersTwo-Part Series on Deaf and Hard-of-Hearing Mothers

 Now in ASL format!

Our research report series describes Lurie Institute research in collaboration with researchers at the University of Michigan Medical School on the pregnancy and postpartum experiences of Deaf and hard-of-hearing mothers.

Access the 2-part series in ASL video format

Chelsea Devona, "A twin pregnancy with a diagnosis of Charlotte Brontë’s pregnancy disability–hyperemesis gravidarum"A Twin Pregnancy with a Diagnosis of Charlotte Brontë’s Pregnancy Disability—Hyperemesis Gravidarum

Chelsea Devona was prepared for common pregnancy issues like nausea and tiredness. But she was not prepared for what happened during her pregnancy.

Learn about Chelsea's Pregnancy Experience

Video Guide Series for Women with Intellectual and/or Developmental Disabilities Who Are Pregnant or Thinking About PregnancyOur New Video Guide Series on Pregnancy Among People With Intellectual and Developmental Disabilities

Browse our new video guides!

The National Center for Disability and Pregnancy Research has published a video guide in four segments for women with intellectual and/or developmental disabilities who are preparing to have a baby or thinking about pregnancy, or who have just had a baby.

Learn more and access the video guides

Perinatal Health Risks and Outcomes Among US Women With Self-Reported Disability, 2011–19Perinatal Health Risks and Outcomes Among US Women With Self-Reported Disability

Dr. Willi Horner-Johnson narrates this short video explaining the health risks and outcomes that researchers found among disabled people during pregnancy and around childbirth. She also summarizes the researchers' recommendations.

Access the short video

Black Maternal Health Week - resources and information. An illustration of a visibly pregnant Black person is next to the text. Black Maternal Health

Learn more. Access resources and an infographic on health inequality.

Learn more

Pregnancy Care Disparities

Deaf and hard-of-hearing women have distinct healthcare experiences during and after pregnancy, facing disparities in needs and outcomes.

Read our Two-Part Series

‘Do you have a man? Can you have sex?’

Disabled women have children at the same rate as nondisabled women, but Lurie Institute director Monika Mitra notes that "[t]he assumption is that a person cannot have a disability and take care of someone else."

Read the story

Featured Work

More

Join Our Community

Subscribe to our newsletter by filling out and submitting the form below: