This dashboard provides national- and state-level data on estimates of who needs Long-Term Services and Supports (LTSS), who receives Medicaid LTSS (institutional services and Home and Community-Based Services), and disparities in access to Home and Community-Based Services (HCBS). The dissemination of data through the accessible Community Living Equity Data Dashboard will enable disability advocates from the local levels to advocate for shifts in policies and services to advance community living equity.

Long-Term Services and Supports (LTSS) refers to a wide range of health and social services provided to individuals who need help with activities of daily living, such as eating, bathing, and dressing, or with instrumental tasks, such as medication management, meal preparation, and supports for community participation and employment.

Medicaid is the primary payer of formal LTSS in the United States. Most individuals needing LTSS desire to receive supports in the community, commonly referred to as Home and Community-Based Services (HCBS). However, there is an institutional bias that contributes to wide disparities in access to HCBS based on state and populations needing LTSS. In addition, there are disparities by race-ethnicity and other equity factors.

 

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Funding Statement

The contents of this dashboard were developed under a grant from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR grant number 90RTCP0006 & 90RTCP0009). NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The content is solely the responsibility of the authors and does not necessarily represent the official views of NIDILRR, ACL, or HHS.

The dashboard is also funded by the Robert Wood Johnson Foundation via a grant entitled, Examining Disabled People of Color's Experience with Structural Racism/Ableism Barriers in Accessing Medicaid Home & Community-Based Services.