Current Events at the Lurie Institute and Its Centers
Strategies for Supporting Parents with Disabilities: when there is Child Protection Involvement
This webinar provides an overview of ableism and discrimination within child protection and provide parents with strategies for addressing these injustices. Presented by Dr. Elizabeth Lightfoot, Distinguished Professor of Social Policy and Director of the Arizona State University School of Social Work, and Dr. Kara Ayers, Associate Professor at Cincinnati Children's Hospital.
Introducing an interactive dashboard to learn more about people with disabilities
The Community Living Equity Center (CLEC) is thrilled to launch our new data dashboard that examines who needs and receives Long Term Services and Supports (LTSS) across the United States. While research has been conducted on how disabled people of color access, use, experience, and are affected by education, healthcare, employment, and criminal legal systems, little has been done to understand racial and ethnic disparities in community living. This new dashboard presents data on the percentage and demographic characteristics of racial and ethnic minorities with LTSS needs and their utilization of Medicaid HCBS and institutional LTSS by racial and ethnic categories, as well as other indicators of disparities in community living equity. The disability community has historically faced barriers to accessing information and timely, credible data vital for local communities and individuals to advocate for data-driven responses for equity in policymaking. The dissemination of data through the Community Living Equity Data Dashboard will enable disability advocates from the local levels to advocate for shifts in policies and services to advance community living equity. Jen and Laurin will demonstrate how to use this data dashboard and will discuss the data. This webinar emphasizes how the data dashboard can be used by advocates in the disability community and other stakeholders.
The New Medicaid Access Rule: Primer and Advocacy Strategies
In April 2024, the federal government finalized a set of regulations known as the HCBS Access Rule. The Rule establishes new protections for HCBS participants and applicants, including requirements related to waitlists, service planning, grievances, critical incidents, quality measures, and participant involvement in setting state policy. States must implement the HCBS Access Rule from 2025 through 2029, with the specific deadline varying depending on the requirement. For example, the Rule requires that each state develop an HCBS grievance system by July 2026. This webinar explains each major provision of the Access Rule, with emphasis on the important work that needs to be done within individual states to best promote beneficiary health, safety and well-being. States are – or should be – starting implementation work now. And now is the time for HCBS participants and their advocates to begin their own advocacy to ensure that implementation is meaningful and participant-focused. Who Should Participate: State policy makers and advocates working with HCBS Participants.
We are unable to provide CEUs or other certifications. Thank you for understanding.
Cultivating Disabled Leadership for an Inclusive & Sustainable Future
This webinar is in honor of International Day of Persons with Disabilities (IDPD). Panelists Yuijao Peng, Sushil Adhikari, Alan Herbert, and Jennifer Lee-Rambharose discuss their work and vision as it relates to this year’s IDPD theme ‘amplifying the leadership of persons with disabilities for an inclusive and sustainable future.’ Dr. LuanJiao Aggie Hu facilitates the discussion, asking questions about their approaches to disability-related work in their country and the role of international perspectives in their work.
#TeachDisabilityHistory Campaign Event
Easterseals Massachusetts is a nonprofit that works with people with disabilities to provide equal opportunities to live, learn, work, and play. Within the youth department, they are currently working on a campaign to #TeachDisabilityHistory. During this recording, you will hear from the young adults working on this campaign. They will share some of the work they have done to promote teaching disability history in schools, and everyone will play a game to test their knowledge of disability history. Committee members will also share insights from an earlier facilitated conversation on community building and Massachusetts disability history.
Carrie Buck Distinguished Fellowship 2024: Robin Wilson-Beattie
A conversation with Carrie Buck Distinguished Fellow Robin Wilson-Beattie and Rebecca Cokley took place on March 7, 2024 at 5 p.m. ET both in-person and online.
Robin's groundbreaking insights into the intersection of disability, sexuality, healthcare, design, and identity have revolutionized sexual-health education.
At Our Centers:
National Research Center for Parents with Disabilities
National Center for Disability and Pregnancy Research
Community Living Policy Center
Community Living Equity Center