The Lurie Institute for Disability Policy

Taking Care of Your Sexual Health with a Disability – We Want to Hear from You!

Seeking teens, young adults with disabilities, and parents and caregivers to be interviewed

Sexual and Reproductive Health of Young People Study header

Information about youth interviews in English

Información sobre entrevistas a jóvenes en español

Information about Parent/caregiver interviews in English

Are You a Teen or Young Adult with a Disability?

Sexual and Reproductive Health of Young People Study

Sexual and reproductive health is an important part of being healthy.

Brandeis University is doing a study about the things that young people with disabilities think are important for their sexual health. We also want to learn how their family, doctor, school, and/or community can help them take care of their sexual health. There may be things that make it difficult or easy for them to get sexual health services. We want to know about these things too. We will use what we learn in the interviews to make a website. The website will teach teens and young adults with disabilities about taking good care of their sexual health.

We are looking for people to take part in interviews.

Sexual and Reproductive Health of Young People Study flyer

To take part, you must:

  • Have been born in the United States
  • Live in the United States
  • Be between 15 and 25 years old
  • Have a disability
  • Be able to talk to us in English or American Sign Language over a Zoom call

We will talk to you for about one hour. We will record your interview so we remember what you say. If you do not want your interview or answers to be recorded, then you cannot be a part of this study. Only the researchers will have access to the recording.

If you do the interview, you will get a $50 Amazon gift card to thank you for your time.

If you would like to take part in the study, please email Janelle Mills at youthstudy@brandeis.edu or call her at 781-736-3928.

If you need an accommodation to take part in the study, please let us know. If you want, you can also have a support person with you during the interview. Or you can do the interview alone.

It is your choice to take part in this study. Nothing will happen to any services you receive if you decide not to take part. We will keep your name and any information that could identify you private. We will write about what we learn and we may share quotes of things you say in our reports, presentations, and publications, but nobody will know who said them.

Funded by the National Institutes of Health, Grant Number: R01HD111038

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¿Eres una persona joven con una discapacidad?

Sexual and Reproductive Health of Young People Study (Spanish)La Universidad de Brandeis está realizando un estudio de investigación sobre las cosas que las personas jóvenes con discapacidades consideran importantes para su salud sexual. Los investigadores también están interesados en averiguar cuáles son los factores que dificultan o facilitan la obtención de servicios de salud sexual. El equipo de investigación utilizará lo que se averigüe por medio de las entrevistas para crear un sitio web. El sitio web les enseñará a las personas adolescentes y adultas jóvenes con discapacidades a cuidar bien su salud sexual.

Sexual and Reproductive Health of Young People Study flyer (Spanish version)Puedes participar en una entrevista si:

  • Tienes una discapacidad, un diagnóstico médico o una enfermedad crónica que afecte tu vida diaria.
  • Tienes entre 15 y 25 años de edad.
  • Has nacido en Estados Unidos y sigues viviendo en Estados Unidos.
  • Hablas inglés, español o utilizas el idioma de señas estadounidense (American Sign Language, ASL).

Si deseas participar en una entrevista, comunícate con el equipo de investigación.

📞 Llama al 781-736-3928 o

✉️ Escríbenos por correo electrónico a YouthStudy@Brandeis.edu

Are you a parent, guardian, or caregiver of a young person with a disability?

Brandeis University is doing a research study to learn about parents’ and caregivers’ opinions on the barriers that young people with disabilities ages 15-25 years old face in getting sexual and reproductive health information and services.

Sexual and Reproductive Health of Young People Study flyer (for parents, guardians, caretakers)You can do an interview if: 

  • You are the parent, grandparent, sibling, or other family member, legal guardian, or caregiver of a young person with a disability who is between 15 and 25 years old.
  • You are 18 years of age or older.
  • You live in the United States.
  • You are able to complete an interview in English, Spanish, or American Sign Language over Zoom or complete the interview using text-based chat.

Contact the research team if you want to do an interview.

📞 Call 781-736-3928 or

✉️ Email ParentCaregiverStudy@Brandeis.edu

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