Joseph Caldwell

Senior Scientist

Joseph  Caldwell's photo


Brandeis Directory


Home and Community-Based Services, Family Caregiver Supports, Long-Term Services and Supports Financing


  • University of Illinois, Chicago
  • University of Illinois, Chicago
  • University of Cincinnati

Joseph Caldwell

Senior Scientist


Joe Caldwell, PhD, is Senior Scientist and Director of the Community Living Policy Center, within the Lurie Institute for Disability Policy at Brandeis University. His work focuses on home and community-based services and supports for individuals with disabilities, older adults, and family caregivers.

Current areas of research include: 1) Impact of person-centered planning on health and community living outcomes; 2) Home and community-based services quality and unmet needs; 3) Promising practices in family support; and 4) Policy analysis and development to improve long-term services and supports financing, shift from institutional to more cost-effective home and community-based services, and enhance integration and coordination with the broader health care system. Other areas of research and scholarship have included outcomes of self-directed services and supports, supports for aging family caregivers and adults with intellectual and developmental disabilities, and the self-advocacy movement.

Previously, Dr. Caldwell was Director of Long-Term Services and Supports at the National Council on Aging, where he led the Disability and Aging Collaborative, a coalition of over 40 national aging disability organizations that work together to advance federal long-term services and support policy.

Awards and Honors

  • Americas Health Insurance Plans (AHIP), Aging and Disability Workgroup (2017 - 2018)
  • Centers for Medicaid and Medicare Services (CMS) Technical Expert Panel on Home and Community-Based Services, Duals, and Long-Term Services and Supports Quality Measure Development (2016 - 2019)
  • Co-Chair, National Quality Forum Committee on Home and Community Based Services Quality (2014 - 2016)
  • United Healthcare, National Advisory Board on Managed Long-Term Services and Support (2013 - 2018)
  • ARCH National Respite Network, Lifespan Respite Technical Assistance Center Advisory Committee (2012 - 2019)
  • Institute of Medicine, Forum on Aging, Disability, and Independence (2012 - 2015)
  • Board of Directors, Consortium for Citizens with Disabilities (2011 - 2018)
  • Board of Directors, National Alliance for Caregiving (2011 - 2018)
  • Joseph P. Kennedy, Jr. Public Policy Fellow, Senate Health, Education, Labor, and Pensions (HELP) Committee (2009 - 2010)
  • Mary E. Switzer Fellow, National Institute on Disability, Independent Living, and Rehabilitation Research (2007 - 2008)
  • Disability Policy Fellow, Association of University Centers on Disabilities (2005 - 2006)


  • Ruiz, S., Giuriceo, K., Caldwell, J., Snyder, L.P., & Putnam, M.. "Care coordination programs improve quality of care for adults aging with intellectual and developmental disabilities." Journal of Disability Policy Studies 30. 4 (2020): 191-201.
  • Eagan, T.J., Teshale, S., Herrera-Venson, Ordway, A.P., & Caldwell, J. "Participation in two evidence-based falls prevention programs by adults aging with a long-term disability: Case-control study of reach and effectiveness." Journal of Aging and Health 31. (2019): 39S-67S.
  • Magana, S., Caldwell, J., Heller, T., & Dababnah, S.. "(August, 2019). Innovations from the Family Support Research and Training Center: Identification of Family Support Promising Practices in the U.S.." International Association for the Scientific Study of Intellectual and Developmental Disabilities 16th World Congress, Glasgow, Scotland. 9/1/2019.
  • Montgomery, A., Caldwell, J., Smith, M., Jorwic, N., Bedlin, H.. Improving Home and Community-Based Services Infrastructure: A Policy Proposal. Waltham, MA Community Living Policy Center, Lurie Institute for Disability Policy, Brandeis University: 2019.
  • Friedman, C., Caldwell, J., Kennedy, R. & Rizzolo, M. "Aging in place: A national analysis of home and community-based Medicaid services for older adults." Journal of Disability Policy Studies (2018).
  • Caldwell, J. State Developmental Disabilities Councils 2012-2016: Investments toward impact. Washington, DC National Association of Councils on Developmental Disabilities: 2017.
  • Caldwell, J., Arnold, K., Abdelrahim, R. Family support promising practices: Identification and assessment of an initial set of promising practices. Chicago, IL Family Support Research and Training Center, University of Illinois at Chicago: 2017.
  • Caldwell, J., Arnold, K., Ingargiola, E., Abdelrahim, R. Recommendations to improve data collection to monitor, track, and evaluate state approaches to family support services. Chicago, IL Family Support Research and Training Center, University of Illinois at Chicago: 2016.
  • Caldwell, J., Bedlin, H., & Eckman, L. Independence and Security Program: Proposal for a voluntary national long-term care insurance program. Washington, DC Assistant Secretary for Planning and Evaluation (ASPE), US Department of Health and Human Services: 2016.
  • Caldwell, J. Immigration reform: Key issues for people with disabilities and older adults. Washington, DC National Council on Aging and Community Living Policy Center, University of California San Francisco: 2014.
  • Caldwell, J., & Bedlin, H. "Beyond the CLASS Act: The future of long-term care financing reform." Public Policy & Aging Report 24. 2 (2014): 50–55.
  • Caldwell, J. & Patterson, R. Report to the President on managed long-term services and supports. Washington, DC President’s Committee for People with Intellectual Disabilities, U.S. Department of Health and Human Services: 2013.
  • Caldwell, J. "Opportunities in the Affordable Care Act to advance long-term services and supports: The role of rehabilitation counseling." Rehabilitation Research, Policy, and Education 26. (2012): 55-66.
  • Caldwell, J., Arnold, K., & Rizzolo, M.K. Envisioning the future: Allies in self-advocacy (Final Report).. Washington, DC Administration on Intellectual and Developmental Disabilities and Association of University Centers on Disabilities: 2012.
  • Caldwell, J. "Disability identity development of leaders in the self-advocacy movement.." Intellectual and Developmental Disabilities 49. (2011): 315-326.
  • Oral life histories of leaders with developmental disabilities in the self-advocacy movement. Contributor to Independent Living and Disability Rights History Project Caldwell, J.. Regional Oral history Office, Bancroft Library, University of California, Berkeley, 2010.
  • Caldwell, J. "Implications of health reform for individuals with disabilities." Intellectual and Developmental Disabilities 48. 3 (2010): 216-219.
  • Caldwell, J. "Leadership development of individuals with developmental disabilities in the self-advocacy movement." Journal of Intellectual Disability Research 54. (2010): 1004-1014.
  • Caldwell, J., Stark, B., & Hauss, S. "Participation of individuals with developmental disabilities and families on advisory boards and committees." Journal of Disability Policy Studies 20. 2 (2009): 101-109.
  • Caldwell, J. "Health and access to health care of female family caregivers of adults with developmental disabilities." Journal of Disability Policy Studies 19. 2 (2008): 68-79.
  • Caldwell, J. & Heller, T. "Longitudinal outcomes of a consumer-directed program supporting adults with developmental disabilities and their families." Intellectual and Developmental Disabilities 45. 2 (2007): 161-173.
  • Caldwell, Joseph. "Experiences of families with relatives with intellectual and developmental disabilities in a consumer-directed support program." Disability & Society 22. 6 (2007): 549-562.
  • Heller, T., Caldwell, J. & Factor, A. "Aging family caregivers: Policies and practices." Developmental Disabilities Research Reviews 13. 2 (2007): 136-142.
  • Caldwell, J. "Consumer-directed supports: Economic, health, and social outcomes for families." Intellectual and Developmental Disabilities 44. 6 (2006): 405-417.
  • Heller, T. & Caldwell, J. "Supporting adults with developmental disabilities and aging caregivers in future planning." Intellectual and Developmental Disabilities 44. 3 (2006): 189-202.
  • Heller, T. & Caldwell. "Impact of a consumer-directed family support program on reduced out-of-home institutional placement." Journal of Policy and Practice in Intellectual Disabilities 2. 1 (2005): 63-65.
  • Caldwell, J. & Heller, T. "Management of respite and personal assistance services in a consumer-directed family support program." Journal of Intellectual Disability Research 47. 4/5 (2003): 352-366.