Data Sources

Our research draws from a rich pool of data on parents with disabilities collected by national, state and regional agencies. We hope that these data sources will help you gain a snapshot of the experiences of parents with disabilities in the United States and their families, including national and regional data sets drawn from surveys, interviews and other methods.

A young daughter stands with her fathers and smiles at her dad.

Compendium of Health Data Sources for Parents with Disabilities in the United States 2017

The 2017 Compendium of Health Data Sources for Parents with Disabilities in the United States 2017 brings together a wide variety of data on parents with disabilities, including socioeconomic status, race and ethnicity, type of disability, and life outcomes.

The groundbreaking National Council on Disability report, Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and their Children, highlights a “paucity of data and research on the prevalence of parents with disabilities, their needs, and their experiences.” This report, titled “Compendium of Health Data Sources for Parents with Disabilities in the United States,” is a summary of selected national data sources that currently capture health information pertaining to parents with disabilities in the United States. Understanding and using these national data sources is critical for research and advocacy efforts in advancing the knowledge about and the rights of parents with disabilities. Read the brief | Plain-language version 

National Research Center for Parents with Disabilities